Well, I had my very first neurologist appointment today? With every doctor I meet, I’m starting to feel more and more like an alien and some weirdo that no one knows quite what to do with. haha, I guess all you can do is laugh about it because there isn’t much else that can be done. I am now officially a medical mystery.
When we got to the appointment, you could tell that the doctor was pretty uncomfortable. He didn’t really know much about familial cavernous angiomas. He has had people come in with cavernous angiomas in the past but not the familial kind. He did tell me what we already knew, in that if they’re not bleeding there is not much to worry about. The major thing to watch for are seizures. He did confirm that blood thinners are a “no no” because familial cavernous angiomas have a tendency to bleed on their own and when you take a blood thinner the likelihood of them bleeding goes up, which causes them to grow, which is obviously not a good thing.
The neurologist did pull up my MRI and showed Sean and I my brain and he pointed out the four cavernous angiomas that he saw. Two are in my left frontal lobe, one is pretty deep inside the lobe and the other is further out. Then the other two are in the back portion of my brain, one being directly above the brain stem - which is VERY scary to me, since I know that the cavernous angioma my dad had that caused him so many issues was the one near his brain stem. The other one is on the right back side a little further away from the brain stem but still close. So, we weren’t really able to ask him too much about their location and what they mean because you could tell he was just really uncomfortable because he didn’t know much about them.
His three major recommendations were as follows:
1. C-section is definitely the way to go
2. No blood thinners
3. Go see someone at the Cleveland Clinic who is more familiar with the familial type of cavernous angiomas
The thing that scared me the most about this appointment was he was shocked how young we were, he was even more concerned that I had never been tested for either the cavernous angiomas OR the Factor V Leiden and then he kept wishing us the best for a healthy baby, he must have said this at least 5 or 10 times. Which was nice of him, but the fact that he kept saying it over and over again made me feel uncomfortable that he wasn’t too confident that she would be healthy.
::sigh:: so, I then paged my pregnancy doctor and he called me right away (he is currently at home recovering from gallbladdar surgery). We discussed what the neurologist said and basically it was no new news but I think it gave him the confidence that scheduling a C-section was the right thing to do. We also have decided that we are going to let her go on her own so, if I would happen to go into labor prior to my C-section date I would just need to walk into the hospital and tell them that I’m the “cavernous angioma/Factor V Leiden girl” and I will need a C-section. From that point forward, the doctors will know what to do with me and will take me to the C-section room to prep for delivery.
So…that’s that, enough about my health - let’s get on to more important things like my baby appointment that I had this afternoon. : 0 )
Met another one of the doctor’s at Paragon today. He was reviewing my chart with me and introducing himself when he realized that I was the “cavernous angioma/Factor V girl.” A lovely new term for me, isn’t it?
Overall, a good appointment, her head is down and her little butt is up under my ribs so, she’s definitely where she should be. We’ll see if she decides to stay there over the next three weeks. She’s still moving like crazy. Her heartbeat is strong and the growth of my uterus is right on, so she still has plenty of room in there - according to the doctor, sure doesn’t feel that way.
So - now that we have, kind of a verdict. It’s time to accept the answers we have and MOVE ON! Tonight I’m washing my first load of baby laundry! Sean cleaned out both cars today, he said he would be the last time they would really be clean. haha. This weekend, we’ll need to install the car seats and pack our hospital bag - just in case ; 0 ) You will notice to the right of this post, that Sean has added a countdown to our baby girl arriving!! It’s SO SURREAL to think that in less than a month she will be here! Our family of two, will become a family of three!!!! HOORAY!!!!!!!!!!!
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